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Family Advisory Board

The Children's Hospital of Michigan Cystic Fibrosis Family Advisory Board (FAB) provides feedback to and partners with members of the healthcare team to improve the patients’ and families’ experiences and care at the Children’s Hospital of Michigan.  The FAB is committed to the betterment and excellence of the entire Cystic Fibrosis (CF) Center at the Children’s Hospital of Michigan. 

 

The Purpose and Responsibility of the Family Advisory Board:

  • Serves as advisory resource to administration and staff of the CF Center and its programs.
  • Promotes improved relationships between patients, families, and staff.
  • Provides a vehicle for communication between patients, families, and staff.
  • Provides an avenue for patients and families to offer input into policy and new program and facilities development.
  • Actively helps implement changes.
  • Provides input into the educational program for staff.
  • Collaborates as partners with staff, physicians, and administration in the planning and operation of specific programs.
  • Provides a safe venue for patients and families to offer input in a setting where they are receiving care.
  • Serves as a coordinating mechanism for patients and families.

Structure and Size of the Family Advisory Board:

The FAB shall comprise at least ten and no more than 12 members, CF health care team professionals: minimum of two members including the administrative director liaison and a CF Center physician.

 

How to become a Member:

Request for memberships are always available and can be made through the Children's Hospital of Michigan CF Center Clinic personnel.

 

The decision to invite a candidate to serve on the FAB is made by the committee following the review of the CF Center personnel.

 

Meetings:

The Family Advisory Board will meet bi-monthly at the Children’s Hospital of Michigan.  Meeting times are to be determined, in advance, by the FAB.  Notification of the meeting times will go out with the meeting minutes.

 

Changing the meeting frequency to alternate months (or canceling a meeting when poor attendance is expected) may occur at the discretion of the FAB.  Such changes will be announced in meetings or messages sent via e-mail.

 

Cross-infection guidelines set by the Children's Hospital of Michigan CF Center will be observed. CF teens and adults must be cleared to serve on the FAB in person and are to follow the infection control guidelines. Respecting the safety of the other CF patients is essential.  The entire FAB relies on the good judgment of its Board Members.

 


Guidelines of Authority:

The FAB is in itself a majority-voting governing body.  In times of controversy, the Family Advisory Board will seek advice from the Children’s Hospital of Michigan liaison.

 

 


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